Friday, June 26, 2020

Stage4 Cancer Treatment...You’ll Love What My Doctor Said

If you’ve been following along you know that I had 3 of my 5 scans about 3 weeks ago and then ended up in the hospital for two weeks with pancreatitis. So, I was just able to finish my last two scans of the neck and brain metastasis. They were both stable with no change PTL! We don’t necessarily expect these to continue shrinking after radiation because the after effects of radiation leaves inactive scar tissue in place of the cancer. The body could carry some of that off eventually, but not always. 
So while fighting this pancreatitis I’ve missed a couple chemo treatments and yet my oncologist says we will continue to pause my treatment until after scans in mid August! Gosh, I’m so excited about that! I have been doing some form of treatment since June 5, 2018!!! I am weary of it all and needed this break, but now need this pancreatitis to settle down so that I can feel good during this pause in treatment. It feels like such a miracle to get a pause in treatment when having a stage 4 cancer that’s in about 5 different places! Please pray that I continue to get better each day so that I can enjoy these last weeks of Summer with my family! This Caronavirus growing so quickly in Arkansas also leaves me wanting my immune system stronger right now. I have not been nervous about it until people at Billy’s work are testing positive and out hospitals are getting full. 

Anyway, praise the Lord for this break from chemo. I’ll take it as long as it lasts! May the Lord show needs favor and keep this cancer stable for years to come! 

 Surely, LORD, you bless the righteous; you surround them with your favor as with a shield. Psalm 5:12



Tuesday, June 16, 2020

THE CT’s Agree!

Latest update on Facebook. 


Day 11 : Solitary Confinement ; otherwise known as in the hospital during a pandemic


If nothing else, I am developing more capacity to accept or tolerate delays, trouble & suffering without getting angry.. I am growing in patience (i .e. self-control)

2 Peter 1:5-8 says, “For this very reason, make every effort to add to your faith goodness; and to goodness, knowledge; and to knowledge, self-control; and to self-control, perseverance; and to perseverance, godliness; and to godliness, mutual affection; and to mutual affection, love.”

Yesterday felt like a wasted day here; a definite delay. The GI doctor said they still “weren’t sure” what was causing all of this.  My throat appears to have a very very mild version of a condition called Achalasia. They aren’t sure what is causing it and don’t feel they’ll do anything if they do know the answer right now because it is so mild. So we most likely won’t explore that further unless it worsens. (Occassional suffering with no fix). Then my stomach is inflamed. They took two biopsies from the stomach that are not back yet. They are looking for an infection with these biopsies. (Hurry up and wait), they aren’t sure if what they pushed through the entry of the small intestine was a partial blockage. They will know for sure when I live normally and eat normally and see how my pain and symptoms persist. (Not a clear answer) and lastly we couldn’t schedule scans until today because of my CT Iodine Contrast allergy, which require premeds. So I sat around here all day to take my prednisone and Benedryl regiment before scans this morning at 8 am. (Delay, I could have taken meds at home, Solitaire for why?) 

I could be grumpy with my nurses. I could get frustrated with the doctor, but these healthcare workers are doing the best they can in the boundaries of their position and the hospital rules. So instead today I joked about how much I love Jello and Vegetable broth 3 times a day and how the only protein on my plate tastes like a liquid version of my childhood flinstone vitamins. The nurses and the aides laugh and I feel good that I can be an easy patient and see them smile or laugh as they go. 

Today I’m awake right now because at 3:00 it was time for more prednisone. And 4:00 it was time for my vitals and any minute they’ll walk in to draw my bloodwork for today. They apologize as they wake me over and over and I told them I’m looking forward to my long nap after my pre-scan Benedryl. They laugh and say they might need some Benedryl too. 

We have choices everyday. Choices to let out our frustration over the delays and inconveniences, directing that at people who are usually doing their best. There’s a few I’d say could step up their game, but for the overall group, they are delightful people working a job so they can go home and take care of their family. I see them and their hard work. I see their patience with patients that are not very happy and feel they can tell everyone about it. I’m choosing to have self-control and be kind. Even though it’s Day 11 up in this place! Whew! Never thought I’d be here this long and still don’t have a good clear answer on what is going on. Pray today we move forward quickly and don’t run into many delays, trouble or suffering. We can’t do anything about this solitary confinement but you can always come visit my window....after the Benedryl wears off!  

“So, as those who have been chosen of God, holy and beloved, put on a heart of compassion, kindness, humility, gentleness and patience.” Col. 3:12

Friday, June 5, 2020

Pancreatitis Vs Cancer Met

I was in terrible trouble when I called out to you, but from your temple you heard me and answered my prayer. 
Psalms 18:6 cev

About 6 weeks ago I was in terrible pain and couldn’t lay down on my back or my side without terrible pain and nausea. I saw a NP and they thought I had inflammation in my colon and put me on a bland soft diet. Things settled down until Monday of this week when the pain wrapping around my middle abdomen and back where my pancreas is located began to hurt badly again and nausea increased. 3 of 5 scans for the end of this month were moved up and extra bloodwork was taken for pancreas enzymes. 

Today I met with a PA and she could see that the tail of my pancreas is swollen and inflamed. My enzymes are elevated also, but were better today than they were on Wednesday. Usually I would be admitted to the hospital for Pancreatitis, but they will give me fluids today, tomorrow and Monday and retest to see how I’m doing. Pray that God will heal me without going to the hospital for continual fluids and iv antibiotics. My pain and nausea is being controlled with prescription meds for now and I will eat a bland, soft diet. If this changes over the weekend I had to promise to call in and go to the hospital. 

Besides this being my miracle day anniversary (*See June 5, 2012) I got great news on my cancer. Largest spots in upper left lung are continuing to shrink. The abdomen and pelvic show no signs of cancer, so liver appt is gone, adrenal gland tumor is gone and there was no comment in the sacrum by my tailbone, so we assume it’s gone, but asked them to recheck. I won’t know about neck and brain until next Wednesday's scans. I was so relieved that this new pain is pancreatitis instead of another new bone met. Seems strange to be thankful for this condition, but it’s better than more cancer growth during this hard treatment. 

I will see the PA again Monday after she talks to my oncologist. They will retest pancreas enzymes and assess pain and nausea and determine next steps for treatment, etc. I am scheduled for a treatment Monday, but she said we may not do it. 

Thankful for all your prayers and reaching out to check on me. Continue to pray that cancer keeps shrinking and even going away forever! And that this pancreatitis is healed without hospitalization. I also have a UTI again and they will give me a new antibiotic for -0 days in hopes to get rid of it this time. It’s difficult as I have a urostomy and it is the perfect environment to grow bacteria. 

Gods bless and much love and appreciation for my prayer warriors. 

Monday, June 1, 2020

15th chemo infusion

I think today is my 15th infusion of Taxol and Avastin. Pray that my scans look so good the end of June that I can have a long break from treatment! And please pray I stay clear of all infections. This has been difficult lately and caused other issues! ✝️👆🏻🙏🏻

Heal me O Lord and I will be healed, save me and I will be saved, for you are the one I praise. 
Jeremiah 17:14