Monday, December 31, 2018

We stood together in prayer and the Lord answered.

Thank you friends for standing with us in prayer! We have gotten our answer and it was a YES! I just finished my trial treatment of Opdivo Immunotherapy! My bloodwork was very close to normal on all liver functions and Potassium. And God took it one step further, along with getting treatment approved on the last possible day, before getting kicked out of the trial, he also gave me good news about my scans! 

Dr B. says that he did a formal review/report of my scans for the trial research company and his finding were better than previously reported. When the radiologist measures the cancer spots horizontally it may show that the spot shrink from a 2.4 cm to a 1.9 cm, for example. This is accurate, but in addition the spots are also shrinking vertically so they look more like a pancake. This is AWESOME! 

Here’s an example. 

I feel like I can let out a huge sigh of relief.  Thank you Jesus! May this single drug work and continue to shrink and destroy this cancer until it’s gone and may it be easier in my body with less “itis” complications. ✝️🙏🏻🙌🏻 

Thank you Jesus for saying YES to my requests. Selah. 

Thursday, December 20, 2018

Sometimes life just gets tough; gotta kick Satan out

Last Tuesday Billy & I went to Fayetteville and had blood drawn and a check up again to make sure the high dose prednisone is doing its work on my inflamed liver. They called it auto-immune hepatitis, which is liver inflammation, but it’s all temporary caused by the trial meds only. We were a bit deflated last week when they said my liver enzymes were so high (over 8 x normal levels) that I cannot continue on the Yervoy medicine any longer. Dr B said that With melanoma patients they only give 4 rounds of Yervoy and then continue on with the Opdivo med. PTL they verified I had 4 rounds so got in a good amount to gain momentum and continue with Opdivo on 12/31 if I’m healthy. I believe I will be if i can avoid all viruses spiraling around. Yesterday, I had blood drawn again and they said my liver enzymes were at the high end of normal again so I am weening down on my steroid medications. This date of 12/31 is my 1 day window to accomplish treatment because I will have gone too long without treatment according to the trial requirements. I cannot do it before because I have to ween off prednisone first. PLEASE PRAY that everything will go smoothly to be healthy on 12/31 and over our Christmas together with my family. We are gathering in a new location in Colorado, so we still get our Colorado white Christmas, but a little different than in Meeker as our precious mom would have hosted. A hard first Christmas without Mom, but looking forward to this time together with Dad, siblings and our families. 

Last Tuesday when we left Fayetteville still processing my appointment, Billy’s dad called and said his mom was very ill and had an ultra sound. They believe they saw cancer in her liver that appeared as metastatic, coming from elsewhere. She was dehydrated and malnourished. My father-in-law got her to the hospital to be admitted Tuesday night for fluids and anti-nausea meds. We got Billy packed and he left for Oklahoma. Slept 2 hours in his truck that night as they didn’t want to keave her, she was so miserable. Wednesday proved to be a bit better and she ate and drank a little bit. Thursday she had a biopsy and an MRI, but slept all day, so miserable. Shortly after midnight on Friday her heart stopped and she went to be with Jesus before we even got a diagnosis. 💔 We are heart broken to have lost both of our moms in 6 months time. We had several days with Billy’s side of the family, planning, crying and reconnecting as we honored my mother-in-law’s life. 

When life gets so hard, I’m so grateful to know that I don’t rely on my strength. We are sheltered by the Master, carried by the Savior and led to a place of peace by the Holy Spirit. 🙏🏻❤️✝️

Tuesday, December 4, 2018

Answers aren’t what we hoped, but God’s still Greater!

Well after 5 hours at HOG today we know why I’ve been so sick once again. The Colitis seems to be taken care of after 4 weeks of steroids. But they do think I have an upper respiratory infection of some sort, caused by a virus originally. My flu test was negative, which I almost wish was the problem. But now I also have what they call auto-immune hepatitis, also caused by my trial meds. It is a temporary condition treatable by more strong steroids, which I’ve already begun tonight.  Basically inflammation of the liver. 
This is found tgrough high liver enzymes in my blood tests. They were slightly high a week ago, but much higher today. It causes the nausea, vomiting, extreme fatigue and overall not feeling good.  I’m sick of not feeling good, so I can’t pretend to feel anything good about this, other than we are glad to know what has been causing me to feel so sick. I am reminded how cancer robs us of LIVING fully as I’ve just been laying in bed so much of the last 10 days. 

I’m only aloud 56 days, which I’m not sure how they count exactly, to go without treatment and still be part of this extremely important trial for me. My clinical trial nurse is like my little angel friend that goes before me and makes sure I am well taken care of. 
She counted and eased my nerves saying we have until January 1st to get a treatment done. I’d sure like to get it done where it doesn’t mess up our Christmas trip to Colorado with my family. Please pray for this. Also, pray my liver has responded really really well to the steroids when I go back in on Friday to retest. 
And lastly, pray that my body can go back on this trial and handle it ok. It was working and boy do we believe God planted this trial in my lap as a life-giving treatment. 

Satan would like to discourage us and make us feel afraid, but God is greater than Satan. God is greater than illness like auto-immune Hepatitis. He is greater than cancer. Sometimes our faith is fully a choice when things look bleak, but we just need a mustard seed of faith! 
Thank you for going to battle with us in persistent and Jesus-empowered prayer! 

This is more than I’ve been in my phone in days, so I’m wiped out and must go, but our family genuinely appreciates everyone who stands with us in this journey. ✝️💜 Thank you. 

Tuesday, November 27, 2018

Celebrating 8 years of life; WITH CANCER.

I am sharing my recent post written in my sisters & I’s ministry page, called Sisters4Christ. Please feel free to follow us and keep our ministry in your prayers and we step out in faith as God calls each of us. 
You can find us on Facebook, Instagram and our web page. 

Treatment still on hold 🙏🏻

I had an oncology appointment today and unfortunately we couldn’t re-start treatment yet because I’ve caught a virus that’s caused me a fever the last two days. 102.3 yesterday and 101.5 today. Hoping tomorrow is much better and I get back on track to have treatment again next Tuesday. Please join me in praying for this. I’m only allowed a 57 day break and next Tuesday will have been 42 days since my last treatment.  

My girl is also real sick, so please keep her in prayer as well. 

Thankful we made it through Thanksgiving before this hit our house as we were blessed to host Billy’s family this year in Arkansas. 🍁

Friday, November 9, 2018

Treatment on hold again

Just when I knew I was feeling your prayers and turning a corner to feel better last week...I crashed. Last Thursday night I was in so much abdominal pain with nausea and repeatedly vomiting. It was a very long night even with prescription pain pills and anti-nausea meds. After about 5 hours I got some relief. I didn’t understand what was causing me to feel so badly for the better part of 3 weeks until I met with my oncologist and clinical trial coordinator this past Tuesday. They ruled out infection and felt certain that the immunotherapy treatment had caused my immune system to wrongly attack my GI tract causing a level 2 Colitis. UC is treated with steroids due to inflammation so we’ve had to put treatment on hold again so that we can treat the Colitis. I cannot have immunotherapy and steroids at the same time. It would be counter intuitive. The nurse couldn’t believe I didn’t go to the ER Thursday night, but I know I’m a complicated case and I’d rather wait to see someone who already has my history if I can make it! I barely did! 

 They gave me IV steroids and fluids on Tuesday and now I’m taking Prevacid and 80 mg of Prednisone (steroid) each day. Let me tell you, with all those steroids my brain was moving so fast on Thursday my body could barely keep up! I am not sleeping well, but I am feeling lots better already. PTL!  🙌🏻✝️
I will see the doctor again in 3 weeks to determine if I can go back on the trial or not. In the mean time I’ll step down the steroid dose by 20 mg each new week. 
We need to pray that I can start back on the trial and that the Colitis flare up will be gone and not come back. And that I don’t have anymore side effects to cause the treatment to go on hold again. Per the trial rules I have a scan next Monday in Fayetteville and it’s supposed to snow here in Arkansas that day! It could be a very good day all the way around if it’s white outside and I have more shrinking spots in my lungs! 
May it be your will, Lord. 🙏🏻

Jeremiah 29:11-13
11For I know the plans I have for you, declares the LORD, plans to prosper you and not to harm you, to give you a future and a hope. 12 Then you will call uponMe and come and pray to Me, and I will listen to you. 13You will seek Me and find Me when you search for Me with all your heart.…

Monday, October 29, 2018

God let’s keep asking.

Hi prayer friends. Please be in prayer for my side effects. I’m not sure if there is something else going on, or if this is all stemming from my treatment, but I am sure struggling with some GI pain, nausea, weakness and fatigue. It’s been going on for a couple weeks and doesn’t seem to want to resolve itself. Saturday I had to take some prescription pain meds and go down way too early for the night. I believe that God knows the source of the problem and can heal me in all aspects. Whether this is from a hidden infection or from treatment side effects, God knows. Join me as we keep asking for healing from cancer, infections and side effects! ✝️🙌🏻🙏🏻

#keepseeking #keepknocking #keepasking