Tuesday, December 4, 2018

Answers aren’t what we hoped, but God’s still Greater!

Well after 5 hours at HOG today we know why I’ve been so sick once again. The Colitis seems to be taken care of after 4 weeks of steroids. But they do think I have an upper respiratory infection of some sort, caused by a virus originally. My flu test was negative, which I almost wish was the problem. But now I also have what they call auto-immune hepatitis, also caused by my trial meds. It is a temporary condition treatable by more strong steroids, which I’ve already begun tonight.  Basically inflammation of the liver. 
This is found tgrough high liver enzymes in my blood tests. They were slightly high a week ago, but much higher today. It causes the nausea, vomiting, extreme fatigue and overall not feeling good.  I’m sick of not feeling good, so I can’t pretend to feel anything good about this, other than we are glad to know what has been causing me to feel so sick. I am reminded how cancer robs us of LIVING fully as I’ve just been laying in bed so much of the last 10 days. 

I’m only aloud 56 days, which I’m not sure how they count exactly, to go without treatment and still be part of this extremely important trial for me. My clinical trial nurse is like my little angel friend that goes before me and makes sure I am well taken care of. 
She counted and eased my nerves saying we have until January 1st to get a treatment done. I’d sure like to get it done where it doesn’t mess up our Christmas trip to Colorado with my family. Please pray for this. Also, pray my liver has responded really really well to the steroids when I go back in on Friday to retest. 
And lastly, pray that my body can go back on this trial and handle it ok. It was working and boy do we believe God planted this trial in my lap as a life-giving treatment. 

Satan would like to discourage us and make us feel afraid, but God is greater than Satan. God is greater than illness like auto-immune Hepatitis. He is greater than cancer. Sometimes our faith is fully a choice when things look bleak, but we just need a mustard seed of faith! 
Thank you for going to battle with us in persistent and Jesus-empowered prayer! 

This is more than I’ve been in my phone in days, so I’m wiped out and must go, but our family genuinely appreciates everyone who stands with us in this journey. ✝️💜 Thank you. 

Tuesday, November 27, 2018

Celebrating 8 years of life; WITH CANCER.

I am sharing my recent post written in my sisters & I’s ministry page, called Sisters4Christ. Please feel free to follow us and keep our ministry in your prayers and we step out in faith as God calls each of us. 
You can find us on Facebook, Instagram and our web page. 

Treatment still on hold 🙏🏻

I had an oncology appointment today and unfortunately we couldn’t re-start treatment yet because I’ve caught a virus that’s caused me a fever the last two days. 102.3 yesterday and 101.5 today. Hoping tomorrow is much better and I get back on track to have treatment again next Tuesday. Please join me in praying for this. I’m only allowed a 57 day break and next Tuesday will have been 42 days since my last treatment.  

My girl is also real sick, so please keep her in prayer as well. 

Thankful we made it through Thanksgiving before this hit our house as we were blessed to host Billy’s family this year in Arkansas. 🍁

Friday, November 9, 2018

Treatment on hold again

Just when I knew I was feeling your prayers and turning a corner to feel better last week...I crashed. Last Thursday night I was in so much abdominal pain with nausea and repeatedly vomiting. It was a very long night even with prescription pain pills and anti-nausea meds. After about 5 hours I got some relief. I didn’t understand what was causing me to feel so badly for the better part of 3 weeks until I met with my oncologist and clinical trial coordinator this past Tuesday. They ruled out infection and felt certain that the immunotherapy treatment had caused my immune system to wrongly attack my GI tract causing a level 2 Colitis. UC is treated with steroids due to inflammation so we’ve had to put treatment on hold again so that we can treat the Colitis. I cannot have immunotherapy and steroids at the same time. It would be counter intuitive. The nurse couldn’t believe I didn’t go to the ER Thursday night, but I know I’m a complicated case and I’d rather wait to see someone who already has my history if I can make it! I barely did! 

 They gave me IV steroids and fluids on Tuesday and now I’m taking Prevacid and 80 mg of Prednisone (steroid) each day. Let me tell you, with all those steroids my brain was moving so fast on Thursday my body could barely keep up! I am not sleeping well, but I am feeling lots better already. PTL!  🙌🏻✝️
I will see the doctor again in 3 weeks to determine if I can go back on the trial or not. In the mean time I’ll step down the steroid dose by 20 mg each new week. 
We need to pray that I can start back on the trial and that the Colitis flare up will be gone and not come back. And that I don’t have anymore side effects to cause the treatment to go on hold again. Per the trial rules I have a scan next Monday in Fayetteville and it’s supposed to snow here in Arkansas that day! It could be a very good day all the way around if it’s white outside and I have more shrinking spots in my lungs! 
May it be your will, Lord. 🙏🏻

Jeremiah 29:11-13
11For I know the plans I have for you, declares the LORD, plans to prosper you and not to harm you, to give you a future and a hope. 12 Then you will call uponMe and come and pray to Me, and I will listen to you. 13You will seek Me and find Me when you search for Me with all your heart.…

Monday, October 29, 2018

God knows...so let’s keep asking.

Hi prayer friends. Please be in prayer for my side effects. I’m not sure if there is something else going on, or if this is all stemming from my treatment, but I am sure struggling with some GI pain, nausea, weakness and fatigue. It’s been going on for a couple weeks and doesn’t seem to want to resolve itself. Saturday I had to take some prescription pain meds and go down way too early for the night. I believe that God knows the source of the problem and can heal me in all aspects. Whether this is from a hidden infection or from treatment side effects, God knows. Join me as we keep asking for healing from cancer, infections and side effects! ✝️🙌🏻🙏🏻

#keepseeking #keepknocking #keepasking 

Tuesday, October 23, 2018

In His Timing

Completed treatment with both IV Meds today in Fayetteville. Billy and I got to visit several hours with this sweet woman named Beth. Today was her first treatment of chemo. Please keep her in your prayers friends. This could be a tough week for her. She will be there every other Tuesday also! Perhaps we were brought together for a reason! 🙌🏻

Dr B says my treatment is working and it’s giving the research team such joy and purpose in their job! I couldn’t believe it when I found out, but i am taking two of the three meds that recently earned two doctors the Nobel prize! It’s amazing and humbling. I’ve waited and waited for this! Oh how I wish my mom was here to hear this. But then again, she sees with heavenly eyes now, so she’s way ahead of me! I’m just reminded again of how faithful God is to His people.  In His timing he always comes through. 👆🏻✝️🙌🏻

Tuesday, September 11, 2018

Back to treatment!

Look! Approved for treatment and comfortably drinking through this iv tube in my recliner! I start a new 6 week cycle today with both immunotherapy meds. 

Prayer Requests:

1) After being really sick for 3 1/2 weeks with inflammation causing Pleuritis and sinusitis and a respiratory infection I finally felt all better last Friday! PTL! Please pray that this treatment doesn’t stir any of those issues back up. 

2) I also had Ecoli in my urine a couple weeks ago and took antibiotics for that. Do pray against a repeat urinary tract infection though. I am still showing slightly positive for an infection. White blood cells are up a little again also, but they don’t want to give me any antibiotics bc the ecoli can be so tricky that my test actually showed two strands last time and they say I’ll need IV antibiotics if I become symptomatic again! 😬 They consulted an infectious disease doctor on their decision not to treat until I become symptomatic as to not cause my kidneys to be resistant to anymore antibiotics. Pray that I do not become symptomatic or have to do iv meds please! 

Appreciate you all so much! 🙏🏻✝️⭐️