Road blocks or just speed bumps?

This has been an interesting week. I’ve gotten a little stronger this week, which helps my spirits, but I have to fight for it and be very intentional about my eating and drinking and make sure they fuel my body. 

We went to OKC yesterday for pre trial scans and testing. My legs are weak and my back pain is not good (which we learned the back tumor has grown) , so I opted for a wheelchair. When going to see Dr Asch I needed to look strong enough to do this trial so I put on make up and fixed my hair and ditched the wheelchair in his building. It worked. He said I physically  look great and able to do it, but they needed to push back the start date to April 11 to give this infection another week to clear. 

Today Dr Asch called and said that my kidney function isn’t good right now and so I will go back to repeat some tests next Wednesday. He said they have to improve in order to do this trial. 

I’d love for everyone to pray these things.

Good kidney function by Wednesday

Safe travels on these road trips back and forth to okc so often

That Billy, myself and our family will be able to stay strong and full of hope 

My body to continue’s to get stronger. 

Thanks for walking this with us. We are holding tight to God and choosing to trust his plan in the unknown. 

He who dwells in the shelter of the most high, will abide in the shadow of the almighty. I will say to the Lord, my refuge, my fortress, my God, in whom I trust. 

•Psalms 91:1-2

Third Time’s a Charm

They say the third time’s a charm, and I’m praying they’re right! Just got home from my third stay in the hospital this year. I was feeling really good last week, finished my anti fungal med on Wednesday and by Friday I had fever and noticeable infection in my nephrostomy tube/bag coming from my kidney. Saturday the nurse told me to go to the ER where they admitted me. With all my symptoms including low blood pressure (82/59) and high resting heart rate (118) the doctor felt I needed to stay and be watched on certain meds while we waited to see what the cultures grew. Waiting on a culture to grow is like watching paint dry when you’re in the hospital! They decided to take out my nephrostomy and put a new one in, just in case infection was holding in to that. Put me on some new antibiotics for 21 days and sent me home today! 

All this just brings us to the prayer request. I will start my clinical trial treatment sometime between 3/14-3/20 and I can’t start if there is any infection in my body. Please pray this time  we kill off all infection easily and quickly! It’s been such a stubborn infection so far. 

Thanks prayer warriors. 💜✝️