Sunday, May 31, 2015

Prayers appreciated

I'm trying to figure out how to blog from my phone, so I hope this "test" works. 
I'm on my 3rd day in bed or on the couch post treatment. It's feeling pretty hard to keep asking my husband and kids to bring me things or rub my shoulders. It's hard to miss out on "living life"! I missed church this morning, which meant we missed two friends baptizing their kids and missed and outdoor service as a family. Things that bring me happiness to be a part of. I'm worried I'm becoming dehydrated, though I'm trying to SIP fluids and eat watermelon and popcicles. I think I'll go ask for fluids tomorrow and nausea meds, but until then prayers are appreciated friends. 

I am also posting updates on my facebook page, for those asking it is: Team Kristi Prayer Warriors

Wednesday, May 20, 2015

Harder Than I Thought

This afternoon I will go for my 3rd round of chemo. Oh, how I hate the sound of that.  The first week was hard because of nausea and the sudden change from feeling healthy and strong to immediate full-time waves of sickness.  The second week they added some steroids for days 2, 3 & 4 to help with the nausea, which did work, but how I ached to sleep and couldn't.  My body couldn't relax on those steroids and the new addition of Avastin, which causes muscle pain and fatigue....literally.  I expected to be functioning at a decent level this last week, but instead I spent hours in bed on Friday, Saturday, Sunday and Monday.  It is hard to describe, but I could feel where my muscles were and they literally felt heavy to carry around and move.  Nausea became a secondary complaint this week. 

As for my personality, my plan was not to be knocked down by this treatment;  especially so early. I have a big event to pull off this Saturday through my small events company.  My family is going to be a big help in making this happen.  As usual they have my back when I need it and I treasure them so much for the sacrifices they make.

Last Saturday I was laying in my bed feeling sad that I'd had to cancel a movie date with my daughter because I was too fatigued to do it. Her disappointment was evident, as was my husbands and my sons over various things that day.  It was a stark realization for all of us that we are moving backwards in my health once again.  I had to accept that this is harder than I thought it would be. It is not just myself that is tired of this on-going cancer journey, but my whole family and all who support us are tired.  Every Wednesday comes around way to fast. 

Please pray with us that God will wrap his arms around us, helping and protecting us in these areas.

1. Minimal side effects this week (only 1 chemo) and that I would feel good to work my event this Friday and Saturday. That the event would go smoothly!
2.  Safety for Billy as he travels to his 20 year reunion.  For our hearts as I cannot travel with him and we both wish I could.
3.  For the chemo and Avastin to be working, shrinking and eliminating the tumors in my lungs.
4.  That we would be patient as our life is interrupted once again.  That we should extend grace to each other when it feels hard or we are coping differently.
5.  That there is a clinical trial approved that would be the cure against the KRAS cancer growth gene.
6.  That God would be gentle with us, providing greatly as we add to our medical expense debt.
7.  Thank God for the people he has put in our lives to encourage us, help us, and pray for us during this ongoing battle.
8.  Thank God for giving us the Holy Bible so that we can hear from Him regularly and worship in the midst of pain.

When times get so difficult and we wonder why God is allowing this to happen, I find it so imperative to go back and look at how the Lord has never left us and carried us to where we are today.  In remembrance of the goodness and greatness of our Savior I want to share our "cancer verses" that we claimed back in 2012 after my first reoccurrence and miracle in Houston.  (See 2012 Post Here

"In times of trouble, may the Lord answer your cry.
 May the name of the God of Jacob keep you safe from all harm.
 May He send you help from His sanctuary and strengthen you from Jerusalem.
 May He remember all your gifts and look favorably on your burnt offerings.
 May He grant your heart's desires and make all your plans succeed.
 May we shout for joy when we hear of your victory
 and raise a victory banner in the name of our God.
 May the Lord answer all your prayers."  Psalms 20:1-5

Thursday, May 14, 2015

Throwback Thursday

I love this picture SO MUCH. It shows the character of my precious husband, Billy, praying over me at the hospital in Springdale two years ago. This was my 3rd battle with this cancer and infection had stormed my body post surgery. Soon after this I took an 11 hour ambulance ride alone to Houston and the MD Anderson hospital because the infection was not responding to the iv meds after 2 weeks. I can't say enough about Billy's love and commitment to his Savior, myself and our children. His heart is what I fell in love with almost 20 years ago and its even more full of light today. So grateful I chose him!

Thursday, May 7, 2015

Treatment Has Begun

Sorry for a late post, but I was so busy "living life" before I might now feel well! 

I had a pre-op appointment on Monday, then surgery to have my port put in on Tuesday.  The surgery went smoothly outside of getting behind on my pain meds and having some nausea post anesthetic. 

Wednesday I had a long day at HOG.  We met with Dr Beck, who we've chosen as our local medical oncologist, did the blood draw and then started chemo. 

I was only able to get 2 of the 3 medicines yesterday because my insurance has not approved the Avastin yet.  They are trying different methods to get it approved or paid for by the pharmaceutical company so that I can start it next week.  It is an approved drug for many kinds of cancer like colon and cervical, but not for my particular kind of cancer yet as its so rare. We are hopeful this will be taken care of soon.

I actually felt pretty good last night, but nausea and some physical weakness has kicked in today.  Its not too bad because I have 2 sick kids at home and have been taking care of them, cleaned the kitchen and even did a light mopping of the tile.  I'm worn out now and ready to lay down.  :)  I told Billy it gets worse from here I'm sure, so I can't go down yet!  He was not happy I was mopping!

Please pray for minimal side effects.  For lots of energy for Billy and my parents and siblings.  Pray for the cancer to shrink away rapidly and permanently. 

Pray that our insurance will cover a huge portion of the expenses. 

Also....that my kids would get better soon! Isaiah woke up with Staph in two places Monday and Alyssa woke up with strep throat on Tuesday!  Its been quite a week, but we've survived! 

On a happy note, we got family pictures taken on Monday night by Love in Focus and our sneak peak is ready!  See them here!