Tuesday, December 17, 2013

Post surgery update - Day 12

I am doing pretty well today. My pain is under control and energy is coming back...slowly! I've had so many of you texting and sending messages to check on me. Thank you so much for caring...and taking the time. Especially during the very busy holiday craze! I am still on partial bed rest because of the stint I am wearing to ensure proper healing this time. It is aggravating! So much easier to do nothing when I am not at home with everything that needs done all around me! My parents are still here and came to do tons of dishes and fix a beautiful dinner last night. Billy has been a real chef (which he loves being) and we have enjoyed eating whatever he comes up with as well. Tonight I get to go to my sister, Amy's, house have a little family Christmas party before we all go our separate ways for the holiday. Her house is so warm and full of Christmas cheer everywhere you turn! I got a sneak peak when we stopped in on our drive home from Houston last Friday.
I took advantage of a few hours up and about on Saturday while attending my son's basketball games, which he won! On Sunday my break was going to church where they had an amazing Christmas Choir program. My favorite was Seth Primm singing Hallelujah Christmas version......gave me chills. I posted a link to the song by someone else below. Still very good!

For the 3rd year in a row I got to take pictures with the majority of my "childhood" family in front of the beautiful trees at church. Its crazy they have all really sacrificed because of 3 Christmas seasons dealing with Cancer, cancer, cancer. This will be the last year, because now I'm cancer free!

HALLALUJAH, indeed!

....http://www.youtube.com/watch?v=1pQVRyPGTEc (Hallelujah song)

My own family, back together again!
Makes my heart glad!

My "childhood" family, minus the eldest sister, Danina.
I miss you Nina!
 

Monday, December 16, 2013

Help for someone else having this surgery....

Hi.  This post is specially written for the person that posted they wanted to talk to me about having a Total Pelvic Exenteration surgery. I cannot find where you wrote your comment or how to get in touch with you. I would love to help answer any and all of your questions!  I had SO MANY before my surgery and nobody to talk to. 

Please reach out again.  You can email me privately at gowrights@hotmail.com

God bless you.

Kristi

Thursday, December 12, 2013

This is a picture today of Kristi and her friends Jodi and Kara. They have all three had similar Cancer journeys, surgeries, etc. Great support system they have formed! AND this is DR. Levenback with them!! I feel like he's my real life Hero! He helped save my sisters life. His decision making and enormous amount of knowledge and skills have brought her to the other side of this medically. I couldn't ever thank him enough! And I know he truly cares about my Sister as well and that means a lot to her and the rest of us. It never feels good to just be a number and he definitely doesn't treat her like that! 
Thank you Dr. L!!! I think you ROCK! --Katy

Headed Home!

Kristi and our Parents are on their way home from Houston. It will take a few days. I can't say how relieved I am to know that they are coming home. I was hoping that she would stay there for a week after surgery but definitely ready to see all three of them. The emotional side of this trip took me by surprise. I knew that I hated for her to go and endure all of that again but the fear/sadness that crept back in I actually had to focus on shutting that down. I flew into Houston for a trip to CA in September and I started crying as we landed, unexpectedly of course! I think that there is so much wrapped up into Houston/MD Anderson and the emotions that go with it that it will always be a hard place for my family. I was nervous for Mom, Dad and Billy to return there with her because I cried just landing there! There will always be this love/hate relationship because on one hand Houston represents sadness, fear, grief, tests and surgeries, disappointments, survival....I could go on and on. But on the other hand it represents LIFE! It represents a chance at life and surviving Cancer and also has great doctors and a wonderful hospital that took such good care of her. And continues to do so! We walked away from there and all the hardship that went along with it WITH our loved one!! We took her home! Not everyone gets to leave that place with the one they love and that was VERY apparent visiting there. Thankful for the outcome of this surgery and that she may have pain free days (hopefully several in a row or maybe not any...!) and grateful that she is feeling better than a few days ago. To God be the Glory.

They are about 4 hours from home tonight and just stopped at a Hotel.  Kristi slept on the drive and said she has been having a little upper abdominal pain but improving. That her energy is still low and cannot wait to get home! Mom told me that she has had little outings but gets worn out easily and needs to rest or nap. It's important for her to walk as well. Thank you for your continued support and prayer, Katy.

Saturday, December 7, 2013

Finally got to leave the hospital late this afternoon!  Our exit was celebrated with long time  family friends, Kim & Nancy Cook.  They are here for Nancy's treatment.  We ask that you join us in praying for God to heal Nancy fully and make her brand new again.  We know that God is always faithful to his children. 
Billy, mom, dad and I are all settled back at our hotel and everything is going well so far.  I have great "nurses"! We even had Papa's BBQ for dinner and I am sure it was the best I've had!  Perhaps compared to days of hospital food, but I will stand by my recommendation regardless!  :)

Billy is here with us until tomorrow afternoon.  He is flying into Tulsa if the weather doesn't impact his travel.  Pray that it does not!

Mom and Dad will stay here with me until I see my plastic surgeon on Tuesday to learn when we can come home.

My meds are kicking in, so I must close my eyes.....

Goodnight.


Friday, December 6, 2013

1 Day post op update

Good morning everyone! Thank you so much for praying us all through yesterday! What a long day. Surgery was much later than anticipated. I'm not sure if it was the lack of food or laying on a hard pre-op gurney-like bed for hours, but I ...got the biggest headache. It even hurt in my entire face and I just wanted to go to sleep. The anesthesiologist mixed me a 3 part potion and it made it go away finally. I think it made me go to sleep too bc I don't remember much after that. I was so thankful! Surgery is thought to be a big success. There was a lot of scar tissue and granulations tissue that they cleaned up. Where they had put what they call "flaps" from my leg muscles up into the pelvis the skin had not stayed healthy and lost at least one layer if not all. This allowed the two "flaps" to grow together with scar tissue. That tension and pain inside of me will now be gone once recovered. The granulation tissue on the outside is all gone and will heal as well. Funny thing is that they recoated those "flap" muscles with fetal cow collagen. It is stripped of cell, bacteria, blood vessels, nerves, etc and send in a hard form, but sterile. They add moisture back to it and sew it to me as needed, then my cells and nerves, etc will grow into it and make it part of me. Modern medicine is amazing! The Dr said a small piece of this calf collagen can cost up to $10,000! So I am thanking Jesus for my insurance right now too! As you can imagine these medical procedures of 2013 have done us in financially! Even with all the EXTREME generosity of everyone through the church, wepay account and directly. I want to say thank you for that once more bc I just can't say how much it has helped us this year! I have been so blessed and humbled that we know so many generous and many anonymous people willing to help this way! We will pay this forward as soon as we can, and however we can!

Anyway, we had thought I'd get to go back to the hotel last night, but because they did more extensive work revising the reconstruction (flaps) and they inserted a stint to keep this from scarring together again, I have been put on bed rest and submitted to the hospital once again. The stint is painful and uncomfortable, but where they stitched the collagen is painful as well right now. They are doing the best they can to keep pain at bay while I'm stuck laying here for now. The nurses here are awesome! I got to see 4 that I know from before so far and they have gone out of their way to come see me. Such an amazing bunch of women that I thank God for as well.

Mom, Dad & Billy went to the hotel last night for a better nights sleep and will head back to see me soon. I'm so grateful to my parents who care for me as if I am still a toddler. They are fully devoted to my well-being and comfort. I'm thrilled that my husband got to come and be here to finish this process with me. I can hold his hand and feel safe and loved.

I love that my kids are having snow days with their cousins right now. That means they are so happy and the time will go by so fast for them.

God is good, all the time!

Oh, P.S. ~ Dad did ask the doctor what breed of cow the collagen comes from. They don't know, but I'm pretty sure it is a very high end breed! As you can imagine we got the doctors laughing with this line of questioning!
See More
Photo: Good morning everyone! Thank you so much for praying us all through yesterday!  What a long day.  Surgery was much later than anticipated.  I'm not sure if it was the lack of food or laying on a hard pre-op gurney-like bed for hours, but I got the biggest headache.  It even hurt in my entire face and I just wanted to go to sleep.  The anesthesiologist mixed me a 3 part potion and it made it go away finally.  I think it made me go to sleep too bc I don't remember much after that.  I was so thankful! Surgery is thought to be a big success.  There was a lot of scar tissue and granulations tissue that they cleaned up.  Where they had put what they call "flaps" from my leg muscles up into the pelvis the skin had not stayed healthy and lost at least one layer if not all. This allowed the two "flaps" to grow together with scar tissue.  That tension and pain inside of me will now be gone once recovered.  The granulation tissue on the outside is all gone and will heal as well.  Funny thing is that they recoated those "flap" muscles with fetal cow collagen.  It is stripped of cell, bacteria, blood vessels, nerves, etc and send in a hard form, but sterile.  They add moisture back to it and sew it to me as needed, then my cells and nerves, etc will grow into it and make it part of me.  Modern medicine is amazing!  The Dr said a small piece of this calf collagen can cost up to $10,000!  So I am thanking Jesus for my insurance right now too!  As you can imagine these medical procedures of 2013 have done us in financially!  Even with all the EXTREME generosity of everyone through the church, wepay account and directly.  I want to say thank you for that once more bc I just can't say how much it has helped us this year!  I have been so blessed and humbled that we know so many generous and many anonymous people willing to help this way!  We will pay this forward as soon as we can, and however we can!

Anyway, we had thought I'd get to go back to the hotel last night, but because they did more extensive work revising the reconstruction (flaps) and they inserted a stint to keep this from scarring together again, I have been put on bed rest and submitted to the hospital once again.  The stint is painful and uncomfortable, but where they stitched the collagen is painful as well right now.  They are doing the best they can to keep pain at bay while I'm stuck laying here for now.  The nurses here are awesome!  I got to see 4 that I know from before so far and they have gone out of their way to come see me.  Such an amazing bunch of women that I thank God for as well.  

Mom, Dad & Billy went to the hotel last night for a better nights sleep and will head back to see me soon.  I'm so grateful to my parents who care for me as if I am still a toddler. They are fully devoted to my well-being and comfort.  I'm thrilled that my husband got to come and be here to finish this process with me.  I can hold his hand and feel safe and loved.  

I love that my kids are having snow days with their cousins right now.  That means they are so happy and the time will go by so fast for them.  

God is good, all the time!

Oh, P.S. ~ Dad did ask the doctor what breed of cow the collagen comes from.  They don't know, but I'm pretty sure it is a very high end breed! As you can imagine we got the doctors laughing with this line of questioning!

Thursday, December 5, 2013

Surgery Day

Good morning friends!  Mom, Dad & I are in Houston once again.  We've had two days of pre-op appointments, CT scans and bloodwork.  I even got to spend a few hours with new survivor friends.  What an encouragement it is to see these ladies years out from their surgery and living life well!

 
We are currently waiting to be called back to the operating rooms. We checked in at 10:00, but surgery isn't until around 12:30.  I'm hungry!
 
Today's surgery will be a bit "exploratory" as they will not know everything they will need to do until they've done an exam.  It is believed to be an out-patient surgery so I will get to go back to the hotel to recover.
I came down here with dread, but am feeling very hopeful that they can get rid of the ongoing pain I've had.  I'm actually a bit excited about that part!

Wednesday, November 20, 2013

Another Surgery in December

Friends, I have one more surgery...which I'm praying is the last.

The surgery is a follow up to my post on July 17 regarding pathology results. Here is a paragraph from that post in case you missed it.

"In my last update I mentioned that Dr. L sent off some skin/tissue samples to pathology and they did come back as he expected.  I have some skin not healing correctly and I believe he referred to it as granulation tissue. My plastic surgeon described this as skin that is trying to heal, but instead produces little clusters of blood vessels.  These blood vessels are very tender and bleed easily, plus they have a lot of nerves going to them causing pain and discomfort. He believes one of his incisions didn't heal well because of excessive swelling in the months following surgery.  He and Dr L. will discuss timing and procedures and then will want me to come back down for an outpatient surgery.  Obviously, going back to the operating table under anesthetic is the last thing I want to do right now, but they believe they can relieve some ongoing pain I'm having if I allow them to remove this granulation tissue and any scar tissue they find during the procedure."

Well, my plastic surgeon and gyn-oncologist both wanted me to come back right away, but I have not mentally been ready to go back to the operating table.  I've been told that Post Traumatic Stress is a real thing in cases like mine and I believe it.  I have anxiety over medical things I've never worried about before at all (like I.V.'s and CT barium drinks)!  Actually I get anxiety in general sometimes and I've never dealt with that.  I don't like it!

Oops, I'm spiderwebbing today.  So....back to the subject (which I'm trying to avoid).

I will leave for Houston on December 3rd and my parents will meet me there.  I'm hoping to find a decent flight later today.  That afternoon they will do blood work and 2 CT scans; one of my lower abdomen and one of my chest.  Without making any of you too uncomfortable (I hope) I will explain the three things they will be looking for;  1) Signs of cancer 2) Where all my organs, etc have settled since surgery  3) If there is any opening behind the scar tissue that they currently see (and plan to remove) in the vaginal reconstruction area. Obviously, we want # 1 to be negative and #3 to be positive.  If #3 is positive it will make this follow-up surgery less intensive.  Please pray for these things.

On December 4th, I will have pre-op appointments with the Doctors and hospital techs.  On December 5th, I will have the surgery and examination under anesthetic.  I do have to decide if I will use a skin graph or a mesh to coat the area where the skin has to be removed to reheal properly. I'm very tired of being cut on, so the skin graph from my outer thing sounds terrible.  I'm also not a proponent of putting something man-made in the body. Please pray for this decision to be clear and from God.

I am going to look for my husband, Billy, plane tickets to come down the night before surgery and stay through Sunday.  We are looking for a 2 bedroom hotel suite or small apartment we can rent for 1 week. Danina has a speaking engagement a couple hours away, so may come up for the surgery as well.  I'm hopeful that the doctor will call me today and let me know how long they think we need to stay there.  We are kind of guessing at this point.  They believe I would have the surgery as an out-patient and just stay close by for about a week until I can have a post-op appointment to release me.  I'm not sure if I will fly or drive home.  This may depend on how well I am recovering and able to sit after the surgery. 

Going to Houston always brings about a hundred questions.  Some will not get answered until we are right there in the moment unfortunately.  They are so very busy there, but do great at taking care of who is in front of them that day!

Please pray for all the details of this trip and everyone involved. 

Thank you prayer warriors.  You are faithful encouragers and I know we couldn't have made it this far without you!  When I am too weak to pray, I know that you all are!  Thank you!

Saturday, September 28, 2013

Happy Birthday to a great Christ follower - My Daddy

"The Lord is their strength,
And He is the saving refuge of His anointed.
Save Your people,
And bless Your inheritance;
Shepherd them also,
And bear them up forever."
Psalm 28:7-9

Dad & the original family of seven he's lead and loved for most of his life.
 
"There is a river whose streams shall make glad the city of God,
The holy place of the tabernacle of the Most High.
God is in the midst of her, she shall not be moved;
God shall help her, just at the break of dawn."
Psalm 46:1-5
Dad & Kristina Dawn saying "see ya later" before surgery in January this year.
 
 
The child of a tiger is a tiger.
Haitian proverb
 
 
"To her the name of father was another name for love."
Fanny Fern (1811-1872), American journalist & writer




Dad & I's Easter dinner at Md Anderson.
 
 
 Happiest birthday to my Daddy, my Dad, my Father, my great example of a Christ follower!
I love you so much and am beyond grateful to God for giving me to you!
Dad heading back to Colorado after 1 year in Arkansas.
What a sacrifice and gift he gave to us staying here so long.
A verse that speaks to me about our last year together.
"My flesh and my heart fail; But God is the strength of my heart and my portion forever....It is good for me to draw near to God; I have put my trust in the Lord GOD, That I may declare all Your works. ~ Psalm 73:26,28 

Friday, September 27, 2013

Small Things, Big Meaning

It's funny how my perspective has changed through this surgery recovery.  As I've gained strength and independence my mind has opened to the gift of remembering.  It feels more like random flashbacks in all honesty, but with each one it laces my heart in another layer of gratitude. 

Here are just a few things I've been thinking of.

Today, as I effortlessly step over the 4 inch wall into my shower, I remember it taking two men and my sister to help me get into the apartment bathtub, just so that my sister could wash my hair while I gripped the back of a shower chair exhausted from the effort of standing for a couple minutes. Once home, I remember letting go of my walker, clinging my sisters hands to get my foot over the 4 inch wall to my shower chair and then requiring help to dry off and get dressed. The effort causing need for a long nap. Showering independently, without a shower chair or rail, for as long as I want the hot water to beat upon my sore shoulders is a praise....a layer of gratitude.

I am attending a Livestrong/YMCA health program for cancer survivors.  I am 4 weeks into the program and I am doing 25 minutes of cardio, plus 7 different weight machines. My confidence in my body's abilities is returning and my endurance and strength is steadily growing.  I flashback to when the nurses or my caregivers were forcing me to get up and walk with my walker down the hallway just 20 feet following me with my wheelchair in case I couldn't stand a minute longer.  How grateful I am that God created our bodies to recover from such atrophy.


This photo reminds me that I had gotten to weak to shower at all. I could only sit at a 45 degree angle, but MD Anderson has a patient salon.  It took two guys to hold my reclining wheelchair at an angle for the stylist to wash my hair.  That day, in that place, I was grateful I had hair at all.  This summer I began to lose large amounts of hair every time I brushed or showered.  It would be all over my shirt and laying on my pillow every morning.  I began taking a lot of vitamins and being ever so gentle with my hair, but nothing worked. Then one day it just stopped.  I found several articles about a condition called Telogen Effluvium, which explained that this can happen when someone has gone through extreme physical stress. It can also be caused by many other situations I've experienced like, emotional or physical stress, abrupt weight loss, high fever, nutritional deficiencies, surgery and illnesses, medications and hormone changes.

Finally, I reached a point I could go see my hair stylist.  It has been 8 months and I was so ready! Here is a before and after picture!  Its amazing how a good haircut can make you feel so much better. And, I went all alone without any caregivers, no wheelchair, no wig assortment on the wall. Another layer of gratitude for healthy well trimmed hair! Isn't it nice to know God cares about these things too?

"For this reason I say to you, do not be worried about your life, as to what you will eat or what you will drink; nor for your body, as to what you will put on. Is not life more than food, and the body more than clothing? Look at the birds of the air, that they do not sow, nor reap nor gather into barns, and yet your heavenly Father feeds them. Are you not worth much more than they? And who of you by being worried can add a single hour to his life?   (Matthew 6:25-27)

Read more: http://www.livestrong.com/article/305154-is-hair-thinning-from-stress-permanent/#ixzz2g6SXotB1

Thursday, September 19, 2013

It's My Birthday!

Today I celebrated my 37th birthday.  Was it flashy? Did it begin or end with a glamorous and well planned celebration?  I would describe it more like significant, memorable, full of laughter, smiles and little surprises.  Today, I wanted to celebrate life and the fact that I am out and living it! Nothing will explain the day better than a few pictures.   If I could add my husband, a football, a couple Facetime calls and a snow cone stand outside my daughters school I would have captured it all!

Began my morning in my favorite way! Very strong black hot tea and a carb!No oatmeal allowed on your birthday!


Faced the day as a Daughter of the Heavenly King ready for my royal birthday!
Thanks you for this awesome necklace Jenny!

Treated to a fun lunch with two of my siblings, Katy & Amy!Thanks Amy! Katy & I both celebrated as our birthdays are just 3 days apart.


Gifted a large unsweet tea with lime!  My favorite!Thank you Katy!

 Came home to these beautiful cupcakes as a surprise from a sweet friend!Thank you Sara!


 A sweaty, post football practice, Isaiah, tooted out Happy Birthday while Alyssa & Billy sang.
Thanks family! One of the most beautiful musical compositions I've heard in a while! :)

Made wishes and blew out the candles with cheers and encouragement!
 
Alyssa's gift showed full devotion to her mama!


A non-glamour day with all the beauty my heart could stand.

Isaiah 46:3-4“I have cared for you since you were born. Yes, I carried you before you were born. I will be your God throughout your lifetime – until your hair is white with age. I made you, and I will care for you. I will carry you along and save you.” (NLT)


Thursday, September 5, 2013

A Summer of Growth

As summer kicked off I was full of anxiety, though I would never want to show it.  I began waking and before I had breakfast feelings of no purpose sat themselves on my heart and mind eating away at the joy of progress I was making.  I had found boredom, but also sweet security knowing  people were rotating so that one person could care for me and another could care for my children. This spoiled lifestyle was coming to an end and I alone would be responsible for myself and the kids while Billy was at work. See, my caregivers were graduating me to independence. I knew it was time, and even looked forward to it a little bit.

My kids were excited to have their mom to themselves.  I was scared that I wouldn't be able to keep up with them.  That their summer would feel boring and they would just fight with each other all day. I had 3 weeks of antibiotics and anti-nausea meds left and the nerve pain in my feet was at an all time high.  My strength and endurance was minimal, though making fast progress through physical therapy. I repeat some of this just to set the stage for my expectations of summer. I should have prepared myself for something different entirely.

God blessed me this summer with quality time enjoying family, friends and especially my children.  No, we couldn't go on bike rides, river raft, hike Colorado mountains, or spend a day at Silver Dollar City yet, but we made fun memories and had plenty of laughs. 

I traveled to Oklahoma to see the Wright family there and share in the celebration of Aunt Gail's life and her entering Heaven's gates.

Alyssa & her cousin Ashton


Isaiah & his Wright cousins: Ashton, Taylor & Ian

Isaiah & I - July 4th
My first trip was to Branson with my mom and dad. I was nervous to be away from home where I was comfortable taking care of ostomies and sleeping with multiple pillows. I had a scare that I forgot my ostomy supplies, but I found them! I had a recovery day at home after this trip, but the awesome news is that I did it! I even did a cave tour!













I hosted, which I LOVE to do! We celebrated Isaiah's Independence day birthday (just a tiny bit more toned down than usual), plus had an overnight visit from Mindy & Greg Linderink.


 
Mindy Mannel Linderink & some of my family





Alyssa & Charlotte at Camp


I had a break - I drove them to their camps and during day camp they stayed with their Aunt Amy's family! Such a special two weeks!
Harry, Isaiah and Luke at Summer Camp
Breck, Isaiah & Luke at Basketball Camp


 I babysat! I decided I could keep up with my 3 year old nephew and had him over for a picnic and sleepover!  Even got to babysit my sweet 1 year old nephew, Caden.  What a gift after months of not even being able to hold him because he was over 10 pounds and I was too weak.



 

 
 
I Played! I took the kids to the creek to wade and fish. We saw several kid movies, went to the Aquatic Center, had sleepovers and playdates, ice cream outings and a backyard campout. Went to two festivals, where Alyssa even got pulled up on stage with the lead singer to "dance a little"!
 
 




By the end of summer I DATED my husband and left the kids behind without any guilt!  It was our 16th wedding anniversary and I planned a surprise historical & tasting tour in Kansas City, requiring 2 miles of walking!  I even did it in heels! Won't do a tour in heals again, even in a great year, but I looked cute for our date!

Lost Valley Trail - Buffalo River
 Labor Day week-end I HIKED! I love the outdoors and especially enjoy hiking through the woods with my family. I admit I was tired and still required some recuperating the next day, but I hiked a 2.3 mile trail to this cave, which I also climbed up into with my husband's help! My heart was happy and feeling blessed! To think we were celebrating that I could walk down my driveway and to the neighbors driveway at the beginning of summer! I was anxious wondering if I could keep up with the kids needs for food and laundry, etc at home! Now I'm hiking...next biking!  If God brings you to it, He WILL get you through it!

Ponca, AR


"So do not fear, for I am with you; do not be dismayed, for I am your God. I will strengthen you and help you; I will uphold you with my righteous right hand." Isaiah 41:10, NIV
 

" I lift up my eyes to the hills. From where does my help come? My help comes from the Lord, who made heaven and earth." Psalm 121:1-2, ESV
 


Relay for LIFE 2013

With a great amount of pain in her feet and atrophy in her legs, Kristi walked the Survivor and Caregiver laps again this year with fellow survivors and friends from her Caner Posse, Hope in Him Christian cancer ministry, plus her dedicated family. Although we weren't celebrating a miracle as we did when her surgery was canceled in 2012, we are celebrating a miracle that she is already joining into life just 4 1/2 months after surgery. To attend and walk this was one of Kristi's physical therapy goals and she did it! Thank you Chris for helping her reach this goal and so many more! It is amazing to think she was in a reclining wheelchair, using a walker, and being helped in and out of bed not long ago!

Kristina Wright, right, and Ingrid Plumlee, second from right, cancer survivors, receive their Survivor Medals on Friday from Ashley Russ, left, at the Benton County Fairgrounds during Relay for Life near Bentonville. The event hosted 37 cancer survivors and about 200 participants for the overnight walka-thon. Relay for Life benefits the American Cancer Society.
Posted: June 8, 2013
 
 
Caregiver Lap
Some of Kriti's Family: Kacey, Dad, Alyssa, Kristi, Joshua, Caden, Amy, Jeff, Jackson, and Katy.

Survivor Lap
Fellow cancer survivors: Terrie, Marnie, Kathryn, Ingrid and Kristi.
Caregiver Lap
Kristi and Alyssa

Tuesday, July 16, 2013

Next Steps - Pathology Results

In my last update I mentioned that Dr. L sent off some skin/tissue samples to pathology and they did come back as he expected.  I have some skin not healing correctly and I believe he referred to it as granulation tissue. My plastic surgeon described this as skin that is trying to heal, but instead produces little clusters of blood vessels.  These blood vessels are very tender and bleed easily, plus they have a lot of nerves going to them causing pain and discomfort. He believes one of his incisions didn't heal well because of excessive swelling in the month following surgery.  He and Dr L. will discuss timing and procedures and then will want me to come back down for an outpatient surgery.  Obviously, going back to the operating table under anesthetic is the last thing I want to do right now, but they believe they can relieve some ongoing pain I'm having if I allow them to remove this granulation tissue and any scar tissue they find during the procedure.

Billy & I are praying and discussing our options while we wait to hear back from my doctors this week.  On one hand, we feel anxiety to have to face any additional procedure, but we also feel hope that they can eliminate some pain and symptoms I'm still having.  The doctors were clear that I should not be feeling pain at this stage of recovery.

In the mean time I'm loving being home with my kids for the summer and feeling good enough to "do life" with them!  I may be a bit different physically than before, and I may get tired much easier, but I'm alive and making more memories.  In light of the several lives lost to cancer just since my surgery in January, I feel incredibly blessed and genuinely humbled to be where I am.  My heart has cried for Martina, Georgia, Toni and Kathy over the last several months as they left this world to go be with our Savior.  It is hard not to ask why they are gone and I am not....survivors guilt, I guess.  They believed in miracles and fought just as hard as I did.  They asked God to leave them here with their families and yet they are gone. Toni was one of the ladies we had been asking you to pray for specifically and she lost her battle with Ewing's Sarcoma the last week of June with a funeral on July 3rd. My heart ached terribly for her husband, children, family and friends who walked so closely with her. Please continue to pray over those left behind.

These ladies lives reminds me of my favorite song, Blessed be the Name of the Lord, based on Job 1:21.  "Naked I came from my mother's womb, and naked I will depart. The LORD gave and the LORD has taken away; may the name of the LORD be praised."  All of these women were praising God publicly, even to the end of their days.  The least I can do is praise God for giving me an option to be cancer free and live on.  In all honesty, this perspective hasn't always been easy in the last few months, but it is a choice I am making over and over.  I hope those who have lost their battle with cancer will be honored by the way the rest of us live on with our gift called LIFE!

"Blessed be your name on the road marked with suffering. Though there's pain in the offering, blessed be your name.  Every blessing you pour out, I'll turn back to praise. When the darkness closes in Lord, still I will say...Blessed be your name!"  (full song below)



Wednesday, July 10, 2013

Post Operative Checkup - July 2013

"Be strong and courageous. Do not fear or be in dread of them, for it is the LORD your God who goes with you. He will not leave you or forsake you.” Deuteronomy 31:6 Some versions say not to be terrified of them, one says not to panic before them; a third says not be afraid or tremble. This verse has been coming to mind for a couple weeks as I knew my follow-up trip to Houston was approaching. Dread is the perfect word to describe my emotions leading up to this visit, but when my sister, Amy, sent me the same verse from her bible study this morning her version used the word terror.  I felt a tinge of terror when I walked back into the Mays building and for a minute fought back the urge to throw up. It felt as if I was walking back into my own battlefield of bad memories.

My appointment was at 9:30 and by the time I saw my doctor at 12:00 I had relaxed some again. I had missed two more appointments by the time he came to my room, but this has been normal and I tell myself it is because he is helping another woman in her own battle against cancer.  No need to be frustrated with him, he helped cure me....and will cure many more with his God given talents/knowledge.

The doctor said he found none of my symptomatic issues to be serious and gave me a few answers.  I do have a section of skin that is not healing properly post surgery and he removed the skin to allow for it to regrow and heal properly.  He will send this to pathology to confirm that his diagnosis is correct, but he feels certain that this was done to aide in healing and not because of concern for any cancer.

I  have been having a lot of nerve-type pain in my feet, but a change in my long term antibiotic is greatly helping this. The Infectious Disease doctor overseas this, and was still willing to see us very late. Our prayer is that this 2nd tier antibiotic will still kill all of this slow dyeing bacteria infection.

I took the time to visit my hospital nurses and physical therapist between appointments (see pic) and it was so fun to see everyone.  I remembered a nurse saying that patients leave their floor and they never know what happens to them, so I wanted to encourage them that their hard work is worth it.


All doctors and nurses thought I was doing really well for not quite 6 months post surgery and said I don't have to come back for 3 more months!

Tomorrow I get to see a woman who had my same surgery 2 years ago and ask her all my nitty gritty questions.  I'm excited for this divine appointment! 

One more appointment on Friday morning with the plastic surgeon and then we head back home.  Tomorrow mom and I get to be tourists in Houston and we don't have to have any tears or DREAD while we do it!

Thanks everyone for your many many prayers, your financial gifts, your well wishes.  We have been beyond blessed by all of you through this time.  Today someone texted me they were in awe of me. I didn't have to think at all about who she should be in awe of.....all of you.  The ones that have entered into this journey with me, prayed me through the most difficult 6 months of my life, volunteered time, money, advice and gifts well beyond anything I would have dreamed.  God has blessed me, and my entire family, with such wonderful friends and church family. Thank you from the bottom of my heart.  I'll have to post more about the outpouring of blessings and how it has encouraged me soon, but know that without all of you and our Savior I couldn't have gotten through this time (my personal battlefield) like I did.

Kristi

Saturday, July 6, 2013

Enjoying LIFE!

I just wanted to share a recent picture of Kristi! This was after she went into Table Rock Caverns in Branson, MO. She had to walk 110 feet down into the cave and then 110 feet back out! That is a huge Praise! We are so proud of her and how far she has come since her surgery on January 31st! Five Months later and we are seeing some amazing progress! We had a great time in Branson where she did a lot of fun things with her kids for about 5 days but then it took about that many days to recuperate! She get's worn out easily but is enjoying LIFE! She's doing well but we all still appreciate all your prayers! She has to return to Houston on July 9th for a checkup with her doctors. She has appointments on the 10th and 12th. She will be traveling with our Mom. They will be flying so please pray over these appointments and their flight! Thank you! ~Katy