|Kristi's " anonymous surprise" tangible encouragement for Easter|
that you all had prayed for with us!
|Dad and Kristi's Easter Feast 2013|
Like the last year this day has been a roller coaster. When dad arrived this morning to make sure all was a go and that each doctor was sure to get what they needed from the CT Scan they discovered via Dr. King (Dr. Levenbacks fellow) that Kristi would not have a CT scan today. She said that after looking at the white blood cell count, the drain output, no bacteria in the new cultures and no fever they did not see a reason clinically to do another scan. Although this is some what a sigh of relief there is still that underlying fear that we do not know what is causing the infection to start with. Dad expressed his concern that the infectious disease Doctor had felt on friday that Kristi would need to do another scan and Dr. King agreed to discuss it with Dr. L. The day moved on with a visit from her PT whom we lovingly call chatty cathy :) She gave Kristi a work out doing a performance test and what they told us was a bird balance - I personally am excited to see Kristi do the bird balance - tomorrow she is planning to take Kristi to the gym so Kristi has been pushed and is moving right along with her PT. She also had a visit from the dietician today who was alarmed at Kristi's malnourishment and told her she needs to be eating 1400 caleries a day or they will begin to feed her via a tube. Dad says she ate more in one meal after that visit than she's eaten in three days! The afternoon concluded with a quick visit from Dr. L who is feeling rushed for time after being out all last week and said he'd be back to see her tomorrow. The infectious disease doctor came back by and in fact said YES he does need a CT scan to check the infectious pockets and to make sure drain is in the right location and perhaps if she needs more drains to determine the right location for them. He said he would order the scan for tomrrow. Dad headed back to the hotel to wash clothes for he and Kristi only to get notified that they'd come back in and told Kristi her CT scan was scheduled for tonight at 9:30. As of now she has drank 3/4 of her first bottle and feeling very nauseaous as she's trying to sip the rest of it away.
MD Anderson is wanting to make sure that when they send Kristi home it is to her home and not back to the Arkansas Hospital for long term care. We are ALL in agreement for that. They do feel like the antibiotic they put her on after she first arrived worked as her drain has dropped to only having 10ml of fluid. This is huge as it was producing between 80-100ml at one point. Also as they did a new culture it did not grow the bacterias as it had here. She took the last of that antibiotic (or as Kristi called it Poison) on Friday night and she has felt better since then.
In the Grip of His Grace, Amy (for us all)